I posted this: https://www.reddit.com/r/loseit/comments/dgzwec/extreme_hunger/ a couple months ago. Basically, I've been suffering from extreme hunger for several years, and everyone on the internet told me it was because I was binge eating, fasting, not eating enough, eating too much, working out too much, working out too little, had an eating disorder, etc. I need to try keto or intermittent fasting or not do keto and go high carb, high volume.
No one would listen to me when I kept insisting all of these crash diets and behavioral changes came as a result of the extreme hunger that randomly started after never having restricted. EVERYONE on the internet told me it was because of the behaviors I was engaging in...after the initial symptoms of extreme hunger started. I was told to track calories, macros. Eat more protein. Eat less protein. Eat more fiber. Eat less fiber. Eat more volume. Eat less volume. EVERYONE became an expert. But everyone ignored the temporality where the extreme hunger started before the disordered eating.
I had been starting to think maybe people on the internet were right, and I was making stuff up to excuse my behaviors. And some of my labs were consistent with underfueling and rapid weight loss. I almost didn't mention that the extreme hunger started before the disordered eating because the internet had convinced me I was crazy.
Well, as it turns out, I have a neuroendocrine tumor. I never would have suspected it. I was looking into all sorts of psychological causes, without ever suspecting I actually had something physiologically wrong with me. I fit all the criteria of someone exhibiting symptoms of the female athlete triad. I lost a ton of weight. I was binging and restricting. I was constantly tired and hungry. I didn't have my period in eight months. It all pointed to an eating disorder.
But despite also wanting to diagnose me with decreased hypothalamic signaling as a result of underfueling (hypogonadotropic hypogonadism/functional amenorrhea), my doctor went on to order some lab tests, not expecting anything abnormal. But a couple weird blood tests and some further diagnostics showed it was a neuroendocrine tumor all along.
Fortunately, the tumor is relatively treatable, and surgery is generally pretty effective. Just wanted to throw this out there. The internet may give you some guidelines on how to curb your appetite or whatever while trying to lose weight or get more fit. But if you know that something isn't working for you, despite what the internet is telling you, PLEASE go see a doctor who will listen to you.
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