Wanted to pick some brains for ideas. I'm out of ideas and options to drop the weight and so are my doctors.
Background: I was a 80 kg marathon runner and in 2009 I started having severe respiratory issues that went undiagnosed for 3 years, turns out it was pulmonary sarcoidosis. I was prescribed prednisone frequently to deal with the respiratory conditions during that time. This was accompanied by weight gain that refused to come off. The condition led to some pulmonary fibrosis.
Ultimately I started having bouts of mania as a result of the corticosteroids and was prescribed antipsychotics to deal with the drug induced mania. This caused further problematic weight gain.
After the diagnosis, Insurance (U.S. healthcare system) would not cover any treatment other that prednisone paired with immunosuppressants and I couldn't afford the $1500/month alternative treatments out of pocket. The prednisone continued and so did the antipsychotics to offset the drug induced mania.
I have now been off both medications for 5 years and I still am unable to lose weight. Due to my morbid obesity (currently at 155 kg) and the secondary effects or allergic reactions, weight loss medications are off the table. Semaglutide (Rybelsus) had some positive effects (lost 15 kg in 5 months) but is no longer covered by insurance as a weight loss medication and is again unaffordable at $1000/month.
Since early on with the weight gain I have been religious with not only my workouts but also my diet. I have a scale, weigh and calculate to the gram and consume only fresh foods (no sugar, soda, processed crap or eating out). I have done this since 1999 for competitive/fitness reasons.
I have seen multiple dietitians, internists, endocrinologists, hormone specialists and personal trainers. I have completed strict 6 month dietary modalities as well as multiple inpatient programs.
Up until last year my workout weekly schedule consisted of 3x 30 minute HIIT, 4x weight training sessions at 90 minutes (not counting stretching) and 5x10 mile trail bike rides.
Now obviously I am at a point where I cannot work out like I used to and the secondary issues from the morbid obesity are getting much worse but the strange thing is I am not gaining weight - it fluctuates plus or minus 4 kg with fluid retention/voiding.
Is there anybody out there dealing with something similar or have any ideas? Getting pretty desperate at this point.
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