This is probably going to be really long, as I tend to be long winded, so I apologize for that and I'll make sure there's a TL;DR at the end for those of you that don't feel like reading this really long post.
So...I suppose I'll start with the basics. I'm almost 36, 5'2", my highest weight was about 450 and I've since lost about 25 lbs. I know I have a long way to go to my goal weight, but I have recently been diagnosed with lymphadema (3 months ago) and lipoedema (1 month ago) and I still have an appointment to go see a rheumatologist here in a couple weeks as my PCP thinks I inherited my mom's osteoarthritis and fibro (yay, thanks mom!). I have done a LOT of searching on this forum for anyone that has posted in regards to lipoedema and lymphadema and weight loss and the only posts I found were from over a year ago.
I know CICO and get how it works, but even when I limit my calories to 1500-1700 a day, I still don't lose more than 15 lbs (I'm willing to bet it's due to the lipoedema). My issue is that I really don't know how much I should be taking in because of the lipoedema, as most calorie charts for someone my body size say that even sedentary is like 3400 calories but I gain weight at less than 2000, which makes no sense. I'm kind of hoping someone here might have some insight, as I'm in a couple facebook groups as well but no one there seems to know either, other than trying diets like keto. I have done a couple diet modifications that help but are totally unrelated to the CICO and are more for inflammation issues (working on giving up coffee....at least coffee with lots of sugar and creamer, working on giving up all sugar, and given up wheat and anything gluten related). Also, I should note that I have a long history of fighting my weight, which I can go into more detail if desired.
My boyfriend and I got a gym membership last month (I had to wait on getting my compression for my lymphadema) and he was using it in the morning, and I have a gym at work I can use as well. I am testing out the compression now (I have a couple minor issues with it) but am finally able to get back in the gym and know all about working out and have no issues with spending time in the gym, but I know I'll have to ease back into it given how much less energy and how much more pain I've been in with the lipoedema.
I guess my questions are thus: Does anyone have any experience with lipoedema and CICO weight loss outside of diet change like keto or south beach or anything like that? Is anyone aware of a way to figure out a proper calorie count for CICO for someone with lipoedema? Does anyone have lipoedema and can give me any food/weight loss tips for getting energy back as I seem to feel like I'm constantly without it? Anyone have any other tips for me as I attempt to tread this journey again with all this new info about my heath that I seem to be fighting against?
Also, I want to make it VERY clear that I do not use my medical issues as a crutch for my weight nor as an excuse. It was more of an AHA! moment because it finally became clear as to why exactly I have always had such a hard time losing weight. Finally having the name to put toward the reason as to why I couldn't lose weight was actually quite a relief but now I need to understand how to work with it, which is why I'm here.
TL;DR: almost 36, 5'2", 425lb, have lipoedema, lymphadema, possibly osteoarthritis, and fibro. Can't seem to lose more than 15 lbs when doing CICO of 1500-1700 cals/day (I have a long history of fighting my weight with CICO and can go into more details if desired) and am looking for help with CICO for lipoedema and tips for it as well as getting energy back.
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